I first met Kristin on Hearing Journey. Today her cochlear implant is being activated. Kristin’s road to this day has been bumpy due to other health issues and she has hurdled or gone around every road block. To read her story go to The Telegraph Hearing Blog.
Choosing a Cochlear Implant
You are at a point in your life where you have to make a life altering decision and choose a cochlear implant either for yourself or your child. Where do you start?
I had to make that decision eight years ago. After going through all the testing and qualifying for the cochlear implant, the audiologist gave me all the brochures he had from each of the companies and answered the questions I had that day. An appointment was then scheduled with a surgeon.
While the surgeon was willing to answer any questions l had about each appliance, he would not advise me in a way that indicated any favoritism of one company’s product over another’s. We picked the date for the surgery and then he said, “You will have to let us know which implant you want two weeks before the surgery.”
Whether they realized it or not, both the audiologist and the surgeon gave me body language clues as to which product they thought was the best at the time. Since I was good at reading visual communication due to my hearing loss, those clues did not get past me.
Armed with my brochures, the answers I got from my audiologist and surgeon, I went home to read and discuss with my husband which implant to choose.
Eight years ago, that is what I had to work with to make my decision. I had to rely on the integrity of the companies whose brochures were going to tell me all about their cochlear implant. I knew what was most important to me and I was able to figure out which implant I wanted. I know I made the right decision and I am very happy with my cochlear implants and the company that makes them.
In the time that has passed since I had to choose a cochlear implant, independent studies have taken place and now a person trying to figure out which cochlear implant to choose has more information available to them when making their decision. The key here is to make sure you have an independent report and not a report that has been construed to favor a company that didn’t do well in the study.
Advanced Bionics made my cochlear implants. I received my first one in 2001 and had the other side done in 2007. The number one thing on my list when I was choosing my first implant was the ability to upgrade without surgery; to have an implant with internal technology that would grow with the science and that is what I have. There is six years between my two implants and I have modern cutting-edge technology on both sides and love the hearing I get with my two implants. My older implant was able to upgrade to the technology I was getting with my newer model on the other side. How great is that?
For anyone making the decision today, it is still a difficult decision with even more information to peruse. As I learn more about the technology and advances, I know that Advanced Bionics would still be my choice today.
Click here to read an excellent and well researched article about choosing an implant.
Vaulted Ceilings and Wood Floors
Where I live, the popular home design for quite a while now has been vaulted ceilings and wood floors. I cannot think of another design in home planning that is more unfriendly to the hearing impaired except maybe smooth tile with vaulted ceilings.
I really enjoy hearing with my cochlear implants and in most situations I hear very well. In my own home I have a combination of carpet and brick tile and my ceilings are flat and eight feet high. Sound doesn’t bounce or echo like it does in homes that I have been in with wood floors and vaulted ceilings.
I find these homes to be so irritating the way sound bounces around that it is getting difficult for me to enjoy going to the homes of friends or family with vaulted ceilings and smooth floors. I don’t want to limit my social life again due to hearing issues when it seems like I have just gotten it back, but more and more I find myself in this situation as friends and family buy or build new homes.
Why are acoustics in home design ignored? Why is this design so popular? The world is noisy enough without creating a situation in your home where noise is amplified. Do others think about the acoustics in their home or is it all about big space?
In my home I want cozy, warm, conversational space. No vaulted ceilings or floors that bounce sound for me.
Weeds!
On Saturday I found myself thinking about sounds that I had never thought about before. Weeding a garden has sounds of its own. Weeds with a shallow root don’t make a lot of noise but you can hear the soil drop off and sprinkle back to the ground in a soft patter. Most weeds though have a deeper root that is solidly embedded in the soil. As I wrapped my gloved fingers around the base of the unwanted plant and tugged, it would make a soft cracking noise as it began to give up its hold on the soil and then with a loud snap would give its final release. Craaacckckck snap! Craaacckckck snap! I heard over and over as I released my pretty flowers from the encroaching weeds.
I spent most of Saturday doing that as we had been gone a lot and my gardens had become a poor sight. They are looking better now and still in need of work. I’m making plans for moving perennials this fall which seems to be fast approaching. I would love to figure out a way to make my flower gardens maintenance free; however, I did find the weeding to be therapeutic as I put the unpleasant vegetation into the bin.
It Feels Good to Feel Normal
Yesterday was eventful with two experiences to remind me how fortunate I am to have hearing with my cochlear implants.
It started out with a trip to the grocery store. I was driving down Main street when I noticed a motorcycle behind me. I “see” motorcycles because I used to have one and I try to be very aware as I was hit by an unaware driver on mine. So, I was keeping an eye on this guy as we left the changed light to move through the next block. Half way up the block I decided to take a right turn at the next light and I needed to change lanes. As I was preparing to signal and move over, I “heard” the motorcycle’s engine rev up and sure enough the impatient driver decided to pass me on the right. It was a stupid and unsafe move on his part that could have ended in an accident if I had not “heard” him because he moved into a blind spot and I would not have seen him. It was also ridiculous on his part as we both ended up waiting at the same light half a block ahead.
After the relief of a near miss, I was quite angered at this motorcycle driver as it is his kind of driving that gives motorcycle enthusiasts a bad rep and leads to accidents. If I would have had the opportunity to tell him so, I would have.
Next on my agenda yesterday was a trip to my audiologist to participate in a study regarding cochlear implant use. That involves a 40 mile drive to another city. I was ready early and thinking about leaving early when I decided to read the newspaper instead. Funny how the timing of things sometimes works out to put us in a certain place at a certain time.
After reading the newspaper, I headed out. I was barely out of town on a county road heading for the highway when the SUV in front of me crossed into the oncoming lane, came back across both lanes, went into the ditch and rolled completely over. As I was pulling over, I was reaching into my purse for my cell phone and was on the line with 911 in a matter of seconds. I didn’t think, “Will I be able to hear them? Can I do this?” I just did. Another car pulled over and the man asked if I was on the line with 911 and I said, “Yes.” He proceeded ahead of me to the car to check on the driver. She appeared to be fine with only minor injuries. I stayed on the line with 911 to give them directions to where we were.
Before my CI, I might have hit the motorcycle. Deaf people are very good drivers, but without sound we rely solely on our vision. Also before my CI, I wouldn’t have had a cell phone to call 911 after witnessing the rollover. I still would have stopped to help, but my assistance would have been very restrained by my limited communication.
It was a dramatic day with a roller coaster of emotions: relief, anger, shock, concerned panic, and relief again. As I finally calmed, relaxed and enjoyed the rest of the day, I thought, “It feels good to feel normal.”
Final Meow
I didn’t know when I was writing about hearing Elvis that I would soon be saying good-bye. Our beloved pet had developed a tumor on his liver and stomach. We said good-bye today and sent him to his rest.
Name That Kitty
This is my cat. We brought him home in June of 1995 when he was about six weeks old. With five family members trying to come up with just the right name and not agreeing on anything, he lived with us for three days as “Kitty.” At that point, I just thought it was terrible that we had not named him yet, so I began to question the family to try to come up with something. I could not hear him, so I asked, “What does he sound like?” My husband and kids said he had kind of a high pitched, squeaky meow, and since he was a kitty, that description seemed right to me. Mittens, Streak, Phantom, none of the names we were coming up with seemed to suit him.
On the evening of the third day, my youngest daughter was playing with our still unnamed kitty when an advertisement for an Elvis CD came on the television. At that point, I suggested to the family, “Should we name him Elvis?” There were no objections, only smiles. So the kitty finally had a name, Elvis.
When we got Elvis I was wearing the strongest analog hearing aids I could be fitted with, but I could not hear my new kitten’s meow. He was a cute, playful kitten, so I enjoyed everything else about him; his adorable face, pretty eyes and really soft fur. I did not hear Elvis until after I was hooked-up with my first cochlear implant in September of 2001 when he was six years old.
Elvis is 14 now and I have listened to him greet, complain, beg, scold and give his opinion for eight years now and I am grateful for every “meow” I hear. He still has a high-pitched squeaky meow and he likes to use his voice. If I could have heard him when we were naming him, he might be called “Squeak”.
Pots and Pans Band
We opened up our lake cabin Mother’s Day weekend. My daughter, son-in-law and two grandsons surprised us with a last minute decision to join us for the weekend. It was really great and we had a good time.
It was especially nice for Paul to have some help putting in the dock and the grandson’s desire to go for a boat ride was a great motivator to get the boats in the water and running. It was a wonderful start to what I hope will be a sunny and warm summer.
This first weekend though was a bit cool and kept the boys inside more. We don’t keep a lot of toys at the cabin, so it didn’t take long for the boys to start looking for new interests. I decided to pull out an old standby. The pots and pans band! I never would have done this when I was a hearing aid wearer. Hearing aids amplified the sound in such a way that some things were uncomfortable. The sound with my cochlear implants is so comfortably natural that I didn’t give the idea of the boys pounding away on pots and pans a second thought.
My daughter was a little puzzled when I said, “Isn’t it interesting how the different shapes of pans make such different sounds.” I reminded her there was a time when some sounds were all the same to me.
With wooden spoons in hand
The little boys tapped a pot then a pan
To their own rhythmless beat they did drum
Not yet a tune anyone could hum
But the joy of two boys and their make believe band playing the kitchen pots and pans!
Are You Listening?
My daughter called me this evening and she was frustrated with the communication in her family. She is married and has a step-daughter age 11 and two boys 5 and 15 months. She was frustrated with her husband’s and 5-year-old son’s listening skills, or lack of. She also felt like they were indicating that she was the one that was unrealistic with her expectations.
We talked at length about why she has the expectations that she has and of course I don’t think they are unrealistic, but they are different from her husband’s for obvious reasons. She grew up with a hearing impaired parent and he did not. We practiced communication courtesies that other households can get by without.
When my girls were growing up, as my hearing worsened over the years, we, as a family, had to make adjustments. It became impossible for me to understand what a person was saying if I could not see his or her face. We stopped the practice of a raised voice trying to get someone’s attention from another room. Although the girls sometimes tried to get me to come to them with a loud, “MOM,” we worked on enforcing the rule that if they had something to say to me, they had to come to me. In return, when I could, I stopped what I was doing and listened.
Going to another room in the house or up the stairs to talk with someone may not sound like such a big deal, or stopping to listen, but if you have to stop what you are doing every time one of your 3 children needs to talk to you, a simple task like cleaning up the dinner dishes can take 3 times longer than it would if you could talk while you work. I remember many evenings when the dinner conversation continued on into clean up time and stopping half way to the dishwasher with dishes in my hands to look at the daughter that was speaking to me. Sometimes, it felt like this simple chore took up half the evening.
There is a plus side though. The benefits of our focused communication far outweighed the increased time it took to get some things done. My girls knew when they had my attention, because I would be looking right at them. Wondering if I heard what they said was rare because they usually had to confirm it during the conversation. Distractions were not allowed because then I would not be able to hear, so the TV was muted or off and there was no background music playing on the radio or cd player. One complaint or argument you never heard in our household was, “You never listen to me!” We listened intently.
Our children’s teen years were not without problems. We were just like everyone else, but I think more tuned in. This allowed us to recognize problems early on. My keen sense of body language allowed me to realize when there were health issues that needed attention and might have gone unnoticed in a family with different dynamics. In this respect, my hearing loss was a blessing.
I’m sure you have heard it before and I’m sure you will hear it again, “communication is key in healthy relationships.” It is not too much to expect to be listened to.
Stunning – Susan Boyle
I have watched this YouTube piece several times now and I just can’t seem to get enough. Like Piers says, this woman’s performance of “I Dreamed a Dream” from Les Miserables is stunning. As Amanada said, it truly is a privilege to hear that , and the faces that Simon makes are priceless. He is fun to watch when he is impressed.
It is such an incredible joy to be able to “hear” a performance like that. To be able to hear the pureness of each note, the accent and the dynamics she put into her presentation. Watching the YouTube piece left me wanting more and I will definitely be watching for more from Susan Boyle.
It also left me feeling, once again, very grateful for my bionic ear; for the advances that have been made in inventions and medicine that allow me to hear with this amazing quality. All I have to do to know the alternative is take off my processors and there I am in the silence. What a relief and a blessing that I don’t have to live the rest of my life in that place.
The title links to a closed captioned version of Susan Boyle’s performance so you don’t have to miss the dialogue. The button to turn on the closed captioning is the arrow pointing up in the lower right hand corner of the video window. If you decide to take a look, I hope you enjoy the performance as much as I did.
2 Bionic Ears 