A Year Like No Other

Yates has been living with me for one year. We celebrated the anniversary on May 13th which marked the exact day I brought him home. It has been quite a year and I am so grateful I had Yates by my side. 

Lately, on our daily walks I have been reflecting on the last year. At the forefront of my mind has been the fact that when Yates is in his vest, when we are out and about, that says to the public that I have a disability and I am assisted with a Can-Do-Canine. For me, that has probably been the biggest adjustment. I remember when I had my interview with Sarah from Can-Do-Canines and she asked me how I felt about making my invisible disability visible. At the time, I had not really thought a lot about what that would mean to me. I know I tried to assure Sarah that I would be fine with it; however, the experience of actually making it visible had some pluses and minuses for me emotionally.

Some history is needed to understand why that was an adjustment. Around the time that I received the diagnosis that my hearing loss was progressive and I would probably be deaf by the time I was 50, I also discovered by accident that I was lipreading.  Apparently I was unconsciously adjusting to losing my hearing and adapting with visual clues. Eventually I came to rely on lipreading. I wore hearing aids, but they did not give me quality hearing that I could use to decipher speech. During those years, when necessary, I would tell whomever I was communicating with that I needed to see their face so I could read their lips. Thousands of times I had to say, “I’m hearing impaired and read lips.” Fessing up to my disability was something I often had to do, but it wore on me. So it remained invisible as much as I could manage to cover it up.

In 2001, when I was 44, my hearing loss had progressed to severe/profound and I qualified to receive a cochlear implant. It was a relief to have doctors finally say there was something that could be done and might help. The cochlear implant was a great success and gave me sounds that I had not heard in years. In many situations speech sounds were getting through and I could understand more conversation. Life began to change and communication got a lot easier. The cochlear implant eliminated my constant need to tell people that I am hearing impaired and I need to see their face for lip reading. It was great to have more choice on when to reveal my disability because I could get through many situations with the sounds I get from my bionic ears.

As wonderful as my bionic ears are, they are not on all the time. I felt a gap in the independence I had gained from family assistance. I realized I wanted more independence when my “ears” are off and I’m in my silent world. For instance, I wanted to be comfortable traveling by myself. Sleeping in a hotel room without a hearing person present was uncomfortable knowing I would not wake to a smoke alarm, knocking on the door, or a phone ringing. With this in mind I searched for options and found Can-Do-Canines and I applied for a hearing assistance dog. 

I was matched with Yates in May of 2020 and I was able to bring him home on the 13th of May. Also in May of 2020, recommendations to wear face masks to slow the spread of the virus, covid-19, had been made to the public. 

Though I hear well with my cochlear implants masks were muffling speech, and I soon discovered that I still read lips. More so than I realized until I was faced with people everywhere wearing face coverings. Not only did I feel a great disconnect from society, I myself couldn’t wear a face mask. When attempting to shop I was confronted with people asking if I had a mask. More often than not, with their speech muffled by a mask, I could not understand what they were saying. I had to resort to telling them “I read lips”  and in some instances they would pull their mask down to communicate with me. There were other events where I was actually not allowed to enter the store. Stores that I will never shop in again due to their lack of sensitivity to the hearing impaired. 

During the dark days of masks, I was training with Yates to work towards our certification. When we practiced being out in public and would go into stores together, Yates in his cape was a visual clue to the store employees that I have a disability and therefore I was exempt from the mask mandate. I was only asked once if I had a mask when I had Yates with me. People often noticed Yates first and I sometimes could see the smile in their eyes when they saw him with me. 

Making my disability visible this way was hard for me at first. I had many years where I could breeze through an event or activity without revealing that I hear with a cochlear implant system.  I enjoyed not having to share that part of me. On the flip side, making my disability visible through Yates during the mask mandate made things easier for me. Over time and with more public outings with Yates, I relaxed and having Yates with me became a comfort. He eased the stress I felt being in a masked world.

A year like no other has passed. I find myself amazed at God’s timing. He gifted me with Yates.  Yates in his shiny black coat, head held high, and tail wagging has served as a ray of light in a dark time. 

UltraZoom

3a76c-meow2smallDid you know that a cat can rotate their ears 180 degrees to find the  source of the tiniest squeaks and rustles? There have been three cats that have been a part of my life. The latest, Elvis, was a long hair domestic. A beautiful male cat. I found it fascinating to watch him rotate his ears toward the sound of my voice versus turning to look at me.

I don’t know what inspired the engineers that developed what is called Ultrazoom in my hearing system, but it emulates what a cat can do with their ears. Ultrazoom allows me to focus my hearing system in a specific direction.

On a recent road trip I worked at being more proactive in the use of the wonderful extras my hearing system provides for me. There were times on our trip when I was sitting in the back seat of the vehicle. I turned on my UltraZoom to enhance the sound in front of me. This setting also shut down the background noise of the vehicle and did a great job of picking up Paul’s, my husband, and Jana’s, my daughter, conversation in the front seat. It was wonderful to be able to hear and participate in the discussion.

When we stopped at a restaurant, I forgot I had this setting on. We chose to eat on the patio and after a bit I realized I could hear Paul and Jana pretty well and I remembered that I had UltraZoom front facing microphones still on.

I have also used the left side focus when traveling as a passenger in the car to enhance conversation with the driver. In a party situation it works great when trying to visit with one or two people. I also checked it out in our local theater when the director made a opening statement without the use of a microphone. Setting my bionic ears directionally towards the stage I was able to get most of what she was saying. It is pretty amazing that with MyPilot (remote control) in the palm of my hand and the touch of a button, I can rotate my ears like a cat.

Zoomcontrol

Edit, Start Dication

The first time someone told me they could hear something different in my speech was when I was 20 and on my first date with my husband, Paul. I had just told him about my hearing loss diagnosis. I was a little taken aback as I had not thought about the affect hearing loss might have on how I talked. He never brought it up again until after I had my cochlear implants for awhile. Now, if my speech changes, Paul says I need to go to the audiologist and get my cochlear implants adjusted. Apparently the first letter that goes is “S”. That is why sometimes when people ask me my last name they think my response is Wenson!

There was one other time the subject of speech came up, but with my mother. I was a hearing aid user at the time and it was obvious that there was a limit to how much they aided me. I had stopped singing in church because I could not hear myself well enough to know if I had the right notes. I shared this frustration with my mother. She thought about it for a moment and then asked me to make her a promise. She said, “Even if you lose all your hearing, promise me you will never stop talking.” I paused for a moment before I answered her. Knowing myself, the perfectionist that I am, I wasn’t sure I could keep that promise but I made it anyway. Deep inside I knew that if I felt that I was not speaking well I would stop talking.

My speech did change. I did not realize it was happening and my family never said anything to me. I adjusted to my hearing loss with increased lip reading skills but that did not help me with my speech. It was only after I got my cochlear implants that my family admitted my speech had shifted with my hearing loss. They had to share the truth as they were telling me how much it had improved with the better hearing I was getting from my bionic ears.

Recently, just after Christmas,  I decided to try enjoying an activity that I loved when I was a kid. I went to the local arena with my daughter to go ice-skating. It had been many years since I’d been on ice skates but I was feeling pretty confident that I could pick it up again. Unfortunately I fell and broke my left wrist.

editstartdictationAs a web developer and a blogger I spend a lot of time on the computer. I am a fast typist with both hands working. Now what was I to do? I knew that I had dictation in text messaging on my iPhone. I decided to take a look around on my MacBook Pro and found that I have dictation there also. I continued to look for it in the apps that I use regularly and discovered that dictation appears under the edit menu in everything I use. With dictation I was able to get long text messages written out so that all I have to do is proof, correct, then copy and paste to where I need it. It has come in handy during my time of recovery.

I also discovered another beneficial use for dictation on my computer. Practicing elocution! As I have been using dictation for about a month now I am able to see when I drop a consonant or do not say a word clearly. The dictation on my Mac computer is quite accurate. If I am speaking clearly it often gets whole sentences right.

Not only did my cochlear implants give me back the gift of hearing, they kept me talking and if I know the song that is being sung in church I sing-along. I haven’t tried singing to the dictation yet. Hmm, I’ll give it a shot – such as feelings coming over me there is one most everything nine see not a cloud in the sky got this and I won’t be surprised disagree – guess what song that is? It is a good thing that dictation doesn’t record tune. Maybe I’ll open up GarageBand and see what I can do with that. Love my bionic ears and love my Mac!

Technical Double Feature

Windblock

Several times over the summer I said to myself, I need to blog about this when I get home! What am I referring to? Windblock! What is Windblock? WindBlock is a strategy that reduces wind noise in my cochlear implant to improve my listening experience in windy conditions.

This is a recently added technology to my cochlear implant hearing system that I didn’t really appreciate until I had the opportunity to enjoy the benefits. There were two different environments where I really noticed the difference this summer.

lakesceneThe first was when Paul and I were taking a boat ride in our fishing boat. I was comfortably leaning back in my seat enjoying the scenery when the thought went through my head, “This is great. There is something different. Why am I enjoying this more?” As the wind breezed across my face and blew my hair back, it finally dawned on me, it sounded different! Then I remembered the “windblock.” I smiled to myself and prayed a “thank-you.”

The second environment was on the golf course. We were out with friends on a slightly breezy day. I haven’t golfed much this summer but on that day, I noticed I was enjoying being on the golf course more than I had in the past when it is windy. I was also better able to understand conversation. Once again I thought, “What is different today?” Then I remembered, “Oh Yeah! Windblock!”

Activate your T-Coil and be ready!

When I found out our local theatre, Little Theatre of Owatonna, was putting in a new sound system with a hearing loop I was pretty excited. I have experienced using my T-coil setting in a looped environment and I knew it would certainly make going to the theatre a joy again. Since I had been to a new audiologist and had some adjustments made to my mappings, I decided I better check the documentation to make sure my T-coil was turned on in one of the programs. Oops! We missed it. I was glad I checked and had enough time to see my audiologist to get my T-coil turned on so I would be ready for the first production using the new sound system.

What is a hearing loop? A hearing loop is a wire that circles a room and is connected to a sound system. The loop transmits the sound electromagnetically. A hearing loop sends sound from the system microphones directly  to people wearing hearing aids or cochlear implants with a T-coil turned on.

hearinglooplogo1I attended the play that was showing there this weekend and was able to use my T-coil setting. It was great to be able to hear the dialogue and the music clearly with the flip of a switch and not having to wear a special headset or some appliance around my neck.

In my community there are now two places that I know of with hearing loop sound systems. The first is the Gainey meeting room at the library and now also the Little Theatre of Owatonna (LTO). I look forward to enjoying many more plays and musicals at the LTO theatre! With my T-coil activated – I’m ready!

My Aqua Case

My Aqua Case kit arrived at he cabin at the beginning of the week of our vacation. There were so many activities to participate in that I didn’t rush to put it together and hurry into the water. I wanted to read all the instructions, charge the new battery and make sure that I did everything just right. A couple of days passed before I was ready to sit down with the system, put it together and try it out.

We had great weather. The lake was a nice swimming temperature and the kids were doing water activities every day. It was time to get out there and join them. Setting up my stronger left ear with aqua mic and my Naida safely enclosed in the Aqua Case, I clipped it to my swim suit and headed for a kayak. I don’t know why – but I was feeling a little apprehensive about actually swimming and getting my head wet.

Family lake activities

After being on the water in a kayak or floating on a blow up chair, I finally found the courage to go all in. Taking a few breast strokes off the sand bar,  I put my head under water and heard the bubbles. I hadn’t heard water like that for a very long time. It was great to have sound while enjoying a favorite family activity.

With the fear of falling into the water removed and being able to hear coaching and instruction from others, I got out on the paddle board and finally mastered it. Last year I didn’t like it, but that had more to do with having to go out in silence.

Glenice on Stand Up Paddle Board wearing Aqua Case

There is peace in being able to hear the ripples of the water while passing the paddle through it. There is comfort in knowing I will be able to hear oncoming boats. And there is joy in hearing the laughter and giggles of my family swimming in the lake. Thank you Advanced Bionics for developing the Aqua Case.

Splash!

In preparation for my summer activities, I ordered an Aqua Case for my cochlear implants in April. Advanced Bionics took my order and began the process system which includes submitting an approval request to my health insurance on the chance that part or all of the waterproof system might be covered.  I hadn’t heard anything from them, so today I called. The order has been held up in the insurance process. Since I had the money for the Aqua Case set aside I had them send one out so I have it before my vacation.

I have visions of swimming with my grandsons and enjoying the sounds of their laughter and squeals as we play in the water. It will be more fun to go out in the Kayak and have no fear of getting my hearing system wet and the thought of mastering our paddle board and being able to hear the water ripple or an oncoming boat is enticing.

Normally I am pretty patient and wait on the process. This time, the thought of going into the silence when I don’t have to was too much and I decided to push forward.

I love hearing all of the time. Even when a sound is irritating and I have the ability to remove my sound system, I don’t, because it reminds me of how deaf I am. Completely. This reminder often brings me to sadness. There are cochlear implant users that appreciate the ability to go into the silence – I’m just not one of those.

I’m excited for my Aqua Case! There will be water sounds, laughter, splashing and joy! I will be able to hear at least in one ear the sounds that bring smiles to others’ faces which I previously viewed from silence. Splish Splash!